Photo of a pair of white feet on an orange blanket. The left foot has a tattoo of a Mandarin duck among some reeds, mostly done in blue. The right foot has a tattoo of a lake and more reeds. There is a bookcase full of books in the background.

Happy ME/CFS Awareness Day! I wrote this poem last year, after I got too sick for screens but before I got too sick to write. …


In my head
Behind my eyes
I'm on the moon
Jumping, flying

In my bed
I fertilise
A field of dreams
Multiplying

But here they stay
My heart, my hopes, my wedding day
And here they fade away
And leave me pillow-deep in grey

I have been
A hundred girls
A hundred…


When I first became disabled with ME/CFS, I didn’t have a connection to the disabled community.

I didn’t want one, either. I googled fibromyalgia support groups not long after I was diagnosed and everything I found made me want to run away. These groups were all full of older women…


Four walls deep in the world I lie
A wildling from a wilder time,
The thought of it is how I cope:
All covered in leaves and bees and hope.

Four miles deep in the woods I walked
And listened to all the birdlings talk,
A sparrow telling its friends a joke
All…


It’s World Mental Health Day again. For five years in a row now, I’ve sat down on this day and written about what mental health means to me. Over the years I’ve talked about the importance of making care accessible; the need to be proud of ourselves even when we’re…


Photo of Daniel Radcliffe as Harry Potter sitting on a bed in a cupboard under the stairs.

How do you learn to be satisfied with a life made small by chronic illness? It’s like Harry grew up at Hogwarts and then, in his early twenties, got shoved in a cupboard under the stairs for the rest of his life. His only comfort the knowledge of the spells…


Drawing of a woman sitting up in bed with a laptop. She is wearing a black shirt and a pink butterfly headband. A watercolour rainbow is spilling out of the laptop and making a wave across the room. A small black duck is riding the wave. Art by Salome Mutter.)

Audio version available on Soundcloud!
Part 1
Part 2

Living with conditions like severe ME is hard. Gold standard health recommendations like sunshine and exercise simply don’t apply to us. And most of the articles out there suggesting activities for bedbound people assume a higher level of functionality than we…


Drawing of a woman sitting up in bed with a laptop. She is wearing a black shirt and a pink butterfly headband. A watercolour rainbow is spilling out of the laptop and making a wave across the room. A small black duck is riding the wave. Art by Salome Mutter.)

Audio version available on Soundcloud!
Part 1
Part 3

Living with conditions like severe ME is hard. Gold standard health recommendations like sunshine and exercise simply don’t apply to us. And most of the articles out there suggesting activities for bedbound people assume a higher level of functionality than we…


Drawing of a woman sitting up in bed with a laptop. She is wearing a black shirt and a pink butterfly headband. A watercolour rainbow is spilling out of the laptop and making a wave across the room. A small black duck is riding the wave. Art by Salome Mutter.)

Audio version available on Soundcloud!
Part 2
Part 3

Living with conditions like severe ME is hard. Gold standard health recommendations like sunshine and exercise simply don’t apply to us. And most of the articles out there suggesting activities for bedbound people assume a higher level of functionality than we…


I keep thinking back to World Mental Health Day. I keep thinking what I would have written if I was brave.

I would have written that this is hard. That behind all those cute explanations of self-compassion and love I made lies a person that just doesn’t know how to…

Sarah Stanton

Disabled writer. Autistic hodgepodge. Human, but don't hold it against me. (She/her.)

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